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"I wish I knew about these programs before!" A brief report exploring barriers to financial assistance reported by gynecological oncology patients

Doherty M, Jacoby J, Gany F
J Psychosoc Oncol

PURPOSE: Despite widespread reports of cancer-related financial hardship, hospital financial assistance programs are underutilized. APPROACH: Rapid qualitative research. SAMPLE: Gynecologic oncology patients with recurrent or metastatic disease, under 65 years old, and Comprehensive Score for Financial Toxicity of 26 or under. METHODS: Semi-structured interviews to elicit (1) financial assistance awareness/knowledge, (2) barriers to accessing assistance, and (3) suggestions for improving access. We analyzed the transcripts using thematic analysis: open coding, consensus building/codebook, and identification of salient themes. FINDINGS: We interviewed 25 patients and identified four barriers and three suggestions for improving access. Barriers: lack of awareness, perceptions of ineligibility, fear of negative consequences, and being overwhelmed. Suggestions: simplifying financial processes, providing individualized assistance, and being more proactive by intervening earlier. CONCLUSION: Increase access by reducing stigma, misconceptions, and more proactively engaging at-risk patients. IMPLICATIONS FOR PSYCHOSOCIAL PROVIDERS: Patients may be too afraid or overwhelmed to ask for help. A more proactive, psychosocial approach is needed.

Doherty M, Jacoby J, Gany F. "I wish I knew about these programs before!" A brief report exploring barriers to financial assistance reported by gynecological oncology patients. J Psychosoc Oncol. 2023;41(5):493-501. DOI:10.1080/07347332.2022.2149374. PMID: 36514954

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Peer Reviewed Research
Outcomes
Patient Experience of Care
Social Determinant of Health
Economic Security
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Other Study Design