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Modernizing consent to advance health and equity

D. Stein, B. Handspicker, M. Bishop, C. Alibrandi, J. Bernstein, D. Chavez, P. Babbrah, M. Solomon, E. Jahn, J. St. Clair, M. Kratz, A. Taylor
Stewards of Change Institute

In early 2021, the Stewards of Change Institute (SOCI) held an online symposium, in partnership with the Stanford University Center for Population Health Sciences, that culminated a yearlong, highly collaborative initiative titled “The National Action Agenda to Advance Upstream Social Determinants and Health Equity” (NAA).

Several recommendations grew out of that event. The primary one was to accelerate health-related progress by modernizing the archaic processes by which individuals (patients, clients, etc.) provide informed consent for their personal data to be shared across programs, systems and domains.

Stein D, Handspicker B, Bishop M, Alibrandi C, Bernstein J, Chavez D, Babbrah P, Solomon M, Jahn E, St. Clair J, Kratz M, Taylor A. Modernizing consent to advance health and equity. Stewards of Change Institute. November 2021. Available online.