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Sharing information about health-related resources: Observations from a community resource referral intervention trial in a predominantly African American/Black community

S.T. Lindau, J.A. Makelarski, E.M. Abramsohn, D.G. Beiser, K. Boyd, E.S. Huang, K. Paaradise, E.L. Tung
Journal of the Association for Information Science and Technology

CommunityRx is a theory-driven, information technology-based intervention, developed with and in a predominantly African American/Black community, that provides patients with personalized information (a “HealtheRx”) about self-management and social care resources in their community. We described patient and clinician information sharing after exposure to the intervention during a clinical trial. Survey data from 145 patients (ages 45–74) and 121 clinicians were analyzed. Of patients who shared information at least once (49%), 47% reported sharing ≥3 times (range 1–14). Patient sharers were in poorer physical health (mean PCS 37.6 vs. 40.8, p = .05) than nonsharers and more likely to report going to a resource on their HealtheRx (79 vs. 41%, p ≤ .05). Most patient sharers provided others a look at or copy of their HealtheRx, keeping the original. Patients used the HealtheRx to promote credibility of the information and communicate that resources were disease-specific and local. Half of clinicians shared HealtheRx resource information with peers; sharers were 3 times more likely than nonsharers to feel they were well-informed about resources to address social needs (55 vs. 18%, p < .01). Information sharing by clinicians and patients is an understudied mechanism that could amplify the effects of a growing class of community resource referral information technologies.

Lindau ST, Makelarski JA, Abramsohn, EM, et al. Sharing information about health-related resources: Observations from a community resource referral intervention trial in a predominantly African American/Black community. JASIST. 2021 Jul 31; doi: https://doi.org/10.1002/asi.24560. Epub ahead of print.

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Publication year
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Peer Reviewed Research
Social Determinant of Health
Food/Hunger
Social Support/Social Isolation
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Other Study Design